Jeremiah's Week!

Wow!!! It’s Saturday already. This week has flown by. I guess you figured it out. It was easier to get back in the swing of things this week than I thought. We made it through our busy schedule with minor problems and lots of surprises.

This is an overview of our week. Monday, he got up and went to school with no problems. He had a great day with no timeouts. To say the least, his teachers and I was surprised. One of the teacher assistants said that no all of the kids had such a good day on the first day after Spring break. He even did well at dinner, when we ate out. Tuesday, meet us with ups and downs. He had to go to time out three times on Tuesday. I'm not surprised. We have many ups and downs. He did great when we went to ride horses despite his instructor being out and another child having a seizure. The seizure was another situation all together. The boy had a habilitation technician and his mother with him. I didn't realize that some mothers forgot their responsibility when they have someone work with their child. The mother stayed on the phone carrying on with her conversation while the person working with the child did all the work. To say the least I got ticked. The mother may be used to the child's seizures but that is still or child and you don't know how much time you will get to spend with any person. To me, God gave me Jeremiah. He gave him to me for a reason. I believe that God thought I could handle him and that I am to take care of him, not some strangers. Now family is another story. My mother does her fair share of watching and helping with Jeremiah but I don't plan to depend on others for this. I understand that you may need outside help for when you can't be there for you child but this mother was nearby and did not even seem to be one bit concerned and I understand that others will care for your child when they are school and that is different also. Jeremiah goes to school also. But please act like you care about your children especially when they need you. After horseback riding, we went to my grandmothers and spent some time with her. Jeremiah adored her neighbor’s baby and even held the little girl. We went home and had a little picnic outside to eat dinner so that Jeremiah could also play basketball while he ate. Basketball is love. That was a long Tuesday but now we made it to Wednesday. Wednesday he had a better day at school, with no timeouts. After school, Jeremiah got a smoothie for good behavior and pawpaw went to therapy with us. He had speech and occupational therapy. Can you say I'm already exhausted? Even writing this makes me exhausted. Thursday, he got up and went to school. He did go to time-out one time on Thursday but I found the reason to be humorous. My little one decided he wanted to be the teacher. He is very bossy and an only child. On Thursday, all day he wanted to be the teacher so they had to put him in time-out but he did do his school work. That’s the important thing. After school Thursday, his therapy schedule was upside down. One therapist had an emergency and another was sick. Instead of having speech, occupational therapy, and physical therapy, we had a little break and we just occupational therapy with a different therapist and physical therapy. Jeremiah caught a little bit of break. After therapy my mom had to get a tire replaced so we had dinner, got the tire fixed, and ice cream. On Friday, he had another good day at school so he played basketball with pawpaw and had pizza for dinner. Thank goodness for a better week than expected at school. We have extremely busy weeks.

As for me, during the day I was busy looking for a job and cleaning. In addition I did go to the doctor with my mom and a woman's get together. So I didn't do too much but enough. One of these days I will have to go back to work. Hopefully, I will find a wonderful opportunity that works in the best interest of everyone.

I have some thoughts on why we may have had a better week after Spring break. He could be finally adjusting to the routine. It takes Jeremiah a really long time to adjust to new situations and this year he is at a new school with new teachers and new kids in his class. Everyone around him is new from office people to cafeteria workers to janitors. Jeremiah was well known at his old school. Another reason that he might be improving at school is that after the holidays, his class added an additional teacher that he identifies well with. He is paired with her and his days even before Spring break were getting better. Jeremiah seems to like her best out of all his teachers. Jeremiah also started horseback riding about two months ago. It is said to be really calming and relaxing. He absolutely loves horseback riding. Jeremiah rides one day a week for an hour and it is about the longest I have ever seen him sit still with the exception to going to the movies. In addition Jeremiah also started children’s Omega-3 vitamins. We started out with dose on the bottle but after some research we increased to the dose recommended for children with ADD or ADHD. He currently is taking 600mg which is the same dose that children take with ADD and ADHD. Jeremiah's behavior seems to overall be improving. I am guessing that it is a combination of it all. It has taken a lot of hard work to get to this point. I’m happy for improvements in Jeremiah’s behavior for whatever reason it may be. :)

End of Spring!

Yesterday, I was stuck on the thoughts that Spring break is almost over but today my thoughts are more on focused on preparing for the school week that is ahead of us. On top of getting back in the grove of things and dealing with Jeremiah’s busy schedule, we also have to be prepared for a week of challenging behaviors as he adjust back to his school routine.  I sometimes wish we could prove that Jeremiah loses information by not going to school year round but I can’t.  The fact of the matter we spend a lot of time with Jeremiah adjusting to going school and the routine.  This year we have dealt with lots of behavior issues and every time we get adjusted then we face another break. Wahoo, no school again. But we made it through it all.

So this week will be a busy hectic one for Jeremiah.  Not only will he go to school Monday through Friday, he will be busy after school. Tomorrow maybe we will get a treat as a reward for us making it through day one.  Dewey’s has free cake squares on Monday.  Tuesday will consist of school and horseback riding. Both Wednesday and Thursday will consist of school and therapies and after all that we make it back to Friday.  Monday and Fridays are the only days we don’t have anything scheduled.  While he is at school, I will spend my time exercising, cleaning, looking for a job, reading, looking into summer camps and some classes to improve my skills. Even though I currently do not have a job, I do find plenty of stuff to keep me busy and his school day flies by. Yay!!! Tomorrow is the beginning again of busy full days that I love and would not trade for anything in this world.

Tomorrow, I will take him to school and remind him to be good and listen to his teachers.  Although, I realize this is almost a joke.  He gives his teachers literally a run for their money.  Jeremiah is what many refer to as runner.  I can always hope that he will be good and have I hopes that he will but I will not be surprised when he is not.  This has been the story of this school.  So as many parent look forward to their kids going back to school this week, I in a way will be dreading and the fact that I will pick him up and most likely find a note about him not listening.  As the week goes on, he’s behavior may get better or than again it may take another week before he gets back in the swing of things.  Good news is that the kids only have one day of no school left before the end of school year so this last chunk of a break is the end.  We have made to the end and it is an uphill battle from here.  Hopefully the end will bring us better behavior as we do not have breaks left.  It takes all year to get through all the breaks and we have made it.  The end is near.

I will dearly miss him as he returns to school but I know it is good for him. Tomorrow we go back to the fast pace life and to behavior issues but the year is almost over.  One step at a time and one day at time till we get to the end.  Summer will be here before we know and then hopefully days filled with fun.

Spring Break, Next Summer Fun!

As Spring break comes to an end, I find myself longing for summer break and days filled with spending the day with my son.  We made many great memories this week but then I’m reminded that I am currently unemployed and hopefully well before Summer I will have a job. This is the first time since he was a baby that I had Spring break off to spend with my son.  We spent our days spending time together indoors, having Easter fun, going to a couple parks, eating out, spending time with great friends, an outing to Chuck E Cheese, getting new glasses, and just having fun. I have thoroughly enjoyed all this time with him and am finding this season of my life to be a blessing.  My son is growing up entirely too fast and I want spend more time with him.  I am hoping to somehow find the best of both worlds. Hoping for something that is flexible but a better opportunity overall. My son has therapies several times a week (Tuesday, Wednesday, and Thursday). He receives speech, occupational, and physical therapy along with horseback riding.  As a single parent, I feel a strong need to be involved with these therapies. I am looking at my unemployment as a new opportunity that God has given me for a better life.  Not sure where He is taking me.  As I look forward to long Summer days with my son, I know that I will be searching for a job that I hope becomes a career for me or prepares me for something better. On top of searching for the perfect job that offers me many new opportunities, I will also be searching for summer camps for my son.  Summer camps are challenge to find that will meet his needs.  Our current biggest need is he is not potty trained.  This will come in time but I need a camp that will accommodate this need.  O the challenges of being a parent in general, a single parent, and a parent to a child with special needs. I love my life though and would not change anything. Following my heart and searching for what best for both of us. Hopefully we can squeeze in lots of family fun, some day trips, visit some new places, and take a trip for a week or maybe a few weekend trips.  Summer quickly approaching for everyone (kids and adults) and there is a lot to do.  And not let the searching and planning begin!!!!

Describing My Son

This is lying heavy on my heart.  Jeremiah is a person and more importantly a kid first.  Down Syndrome does define him but lots of characteristics that you see in you and I and others define him.  Yes your right, Down Syndrome is part of him but not at all who he is. You see God made him extra special by giving him an extra chromosome.  That also gives me more to love and he is not a bit shy about which he is.  He is not afraid to be himself and let all those wonderful characteristics that describe him come out like many of us are.  I thought it would be nice to use the alphabet to describe him.

A- Amazing
B- Brave
C- Cute
D- Daring
E- Energetic
F- Fighter
G- Giving
H- Happy
I- Independent
J- Jealous
K-Kissable
L- Loving
M- Memorable
N-Nosy
O- Optimistic
P- Perfect (the way God made him)
Q- Quick
R- Retentive
S- Smart
T- Touching
U- Unique
V-Vocal
W- Welcoming
X- Xenodochial
Y- Young
Z- Zesty

Not: This is not my picture but one going around facebook and the same is true for those with Down Syndrome of any disability.

The Meaning Behind A Special Kids Name: Jeremiah 29:11

Before my son was born his father and I debated on names for our angel. We had several in mind. The ones that came to mind early on included using Michael, David, and William in different combinations. They were all special to me. David came from my dad, Michael came from my cousin who had passed away in a motorcycle accident, and William came from my grandfather who passed away when I was young. These are all important men in my life and meant a lot to me. For whatever reason that only God knows Jeremiahs dad decided that we should use a biblical name for our son. At which point Jeremiah came to mind because Jeremiah 29:11 is his dad’s favorite bible verse. What a wonderful reason to name our son Jeremiah with great things in mind for him. During my pregnancy I did not know that Jeremiah would be special needs and nor did any concern cross my mind because I have always that a child is a child first and God never gives us more than we can handle. To this day, I do not if this bible verse still has lots of meaning to Jeremiah's dad or not as he is not involved with our son but I know it has special meaning to me and my son.

Jeremiah 29:11 says "For I know the plans I have for, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future." I used the New International Version to get this verse.

For this means a lot to me. It means that even though I got pregnant young, had a child out of wedlock, and struggled a lot that God still loves me. Not only does He love me but He has a plan for me. A plan that even though I look at my life and it's not where I thought it would be in any way shape or form but His plan is not to harm me. I'm still alive, happy, and working hard to get to where I need to be and I hope that I am going in the direction that God wants me to be. I am starting to feel more content and happier that I am doing His will. In saying all that the verse also tells us He gives us hope and a future and I have lots of both of these. I am truly blessed with all God has given me and trusted me with. God never gives us more than we can handle and he knows how strong we are but He sure does like to test my strength and I'm a lot stronger than I could have ever imagined. Today, I am very happy with where I am at and am thankful that God has a plan for my future.

For Jeremiah this means that his life is in God’s hands. And God is going to prosper his life and not harm. God is going to watch over him. Jeremiah's mommy can have hope that Jeremiah will have an amazing future that only God can give him. Jeremiah may not understand this verse yet but it is still important to him. His name came from this verse in particular and God gives us so much hope for his future and our future from this one verse.  I believe that God picked this name for him and put it in our hearts to name him Jeremiah.  A special kid needs a special name that gives him and his family hope a bright for future for him.

This verse is very important to my family and I hold it close to my heart. I find it not only a great verse for me and my son to live by but it is a wonderful verse for everyone to live by. God puts hope in all of our hearts. God has a plan for each of our lives and it is one to prosper each of us and not harm us. My son's name has special meaning to us and it is a daily reminder that God has a plan for me and he is taking care of us. I am thankful for so much he has done for me.

 

Hi! Welcome to my Blog :)

Hi! Welcome to my blog.  My name is Tonya Simmons.  I am 27 years old.  This blog is to honor my son's life.  His name is Jeremiah Adams.  He is a truly amazing eight year old boy with Down Syndrome. For many years, I have wanted to write a book about his story and my story but my blog is smaller scale way to write our story.  A book cannot be wrote over night to encourage others but a blog can be wrote one post at a time and with a sense of what is going on at that time with lots of feelings put into it. I know this is a short opening but I'm ready to get writing.  In the coming days, I hope to provide everyone with some history of Jeremiah's Journey and how we got  to where we are today. Before, I close I would like to say thank you to those helped or encouraged me in starting this blog. Some of those include Leslie Branch, Melva Winters, and Amber Alexander.